Your blood has crescent moons: How sickle cell anaemia is silently endangering India’s tribes

Srirupa RayTimes Network
Dec 22, 2023 | 11:52 IST
Victoria Gray (extreme left), first person in the world with sickle cell disease to successfully undergo gene editing therapy, along with Gautan Dongre (centre), secretary of the National Alliance of Sickle Cell Organisations, at the International Summit on Human Gene Editing in London in March 2023

US, UK approve new gene editing therapy, PM launches mission to root out disease by 2047; but more awareness drives among masses and medics are the need of the hour, feel the kin of those affected

When Gautam Dongre’s two-month-old son had to be given a blood transfusion, the doctor thought it was just another case of severe anaemia. But after a few months, the child fell ill again and the back and forth from hospital continued for the next two and a half years. Till a senior doctor advised a sickle cell anaemia test.

It's been 19 years since, and Dongre has had another child diagnosed with sickle cell anaemia. The US and UK have recently approved a new gene editing therapy that can prove to be a permanent cure for the millions suffering from the disease around the world. But Dongre feels India needs sensitization of the masses as well as medical practitioners first before any new remedy is even mooted.
/india
Copyright © 2024 Bennett, Coleman & Co. Ltd. All rights reserved. For reprint rights: Times Syndication Service.